Friday, March 25, 2016

Long Overdue Update


Yes, Campers, it has been a while.   No excuse other than sheer lack of ambition. But, here goes. . .

 Since I can’t remember what I told you last, I’ll give a little background.  I had been on weekly chemo, but the cocktail of three drugs I was receiving whacked my blood platelet count to an unacceptable level.  So, in the interim, I was cut back to only one of the drugs which was a little kinder on my blood, but was not enough to effectively fight the disease. So, a couple of months ago, I was put on a regimen of immunotherapy.  So now, I go every three weeks for an infusion of Keytruda, which is the drug that worked for Jimmy Carter.  Oh, and I pretty much have to use a wheeled walker to get around and am on oxygen 24/7.  I really suck at hide-and-seek now as all you have to do to find me is follow my air hose.

 And, so far, I think that the treatment is having some effect.  I generally feel better and do not get as short of breath after any activity like I has been.  But, even at that, there have been no extensions to my projected shelf life.  According to the averages, if the treatment works, I should be gracing this world for at least eight months, but most likely more than that.  If the treatment does not work, I’m looking at four to six months.  Now, let me hasten to add that these numbers are based on averages.  I consider nothing about me to be as pedestrian as ‘average’.  I’m planning on hanging around for a while.

 My activities have been somewhat curtailed, though I have been to a few shows at WSLR and have made it down to Venice to visit Elaine’s Mom on a few occasions.  I still go to Team Trivia Challenge every Wednesday evening and my weekly support group meetings every Thursday afternoon.  I don’t trust myself to drive so Elaine and my friends Karen and Will have served admirably as my chauffeurs.  I would be lost without my support team.

 Man, nothing like a keyboard in front of me to make my mind go blank.  I spend my days reading, surfing FaceBook, and working puzzles.  My former workmates have done a great job in keeping me supplied with puzzle books and other goodies.  A group from Tropics has been by a couple of times as well as my buddy Ken every couple of weeks.  I seem to draw energy from visitors.

 Speaking of visitors, my sister Connie and brother-in-law Frenchy were here a few weeks ago with my nephew Len from Houston.  They will be back sometime in April along with my niece Madeline and her husband Brad.  And my daughters Liz and Adrienne, son-in-law Eric, and granddaughter Amelia will be down for a few days over April 1st.  And my son Joey is looking to come down sometime in May.  And I can’t forget my daughter Kate with the grandkids Jennifer and David who are frequent visitors.

 OK, enough of Old Home Week. . .  I’ve been enjoying March Madness on TV as the tournament is possibly my favorite sporting event of the year.  Always good for a few surprises, like Michigan State getting knocked off.  Sadly, my Pitt Panthers followed their normal pattern of one and done, this year getting knocked off by Wisconsin.  Only solace is that WI is Liz’ alma mater.  And baseball season will be firing up soon and that will mean televised games.  Life is good!!

 On that note, I’ll sign off for now.  Hopefully, the next update won’t take as long.

 Peace and love to all,

Joe